"So, what are you doing with yourself now?"

(So few people are subscribed to this blog that this is the easiest place to put this post in case I need to "explain my circumstances" to someone. If you do happen to stumble upon it and decide to read its riveting contents, knock yourself out. In fact, reading it may well have that effect!)

The question, though fully expected, still catches me like a possum in the headlights.

"So, what are you doing with yourself now?"

Most people who follow me on Facebook know that I was made redundant ten or so months ago, but since then my feed has been full of self-taken photos of beaches and mountains and other bushwalking-type images. So the question is probably a reasonable one (barring the question of, "Who's business is it, anyway!"), but I still hesitate a moment as I run through my said-in-my-head repertoire of replies:

"I work as a Sub-Contracted Mercenary and Assassin for a Group of Chartered Bounty Hunters."

"I'm a Submarine Propulsion Technology Consultant for the Swiss Navy."

"I and my team, are in charge of Reversing the Polarity of the Neutron Flow in the Large Hadron Collider"

"I'm a Horse-Whisperer at Flemington Racecourse"

And then I fumble with a mumble of an answer, "I'm still sorting things out," or "I'm between jobs," or, fudging between the ridiculous answers and the feux-truth, "I'm doing some photography/ conference videography/ photo restoration." The cold, hard truth though, is that after months of living off a redundancy, mixed with facing up to gruelingly impersonal demoralising interviews, waiting, more reviews, waiting, and more interviews, I have been formally placed on a government Disability Support Pension.

No Swiss Navy or Whispering to Horses, but also no "solid self-sufficient-income self-employment"?!? What am I doing, you ask? I'm a pensioner at fifty-one, and we're surviving.

For twenty-five years I worked at the same place, on a low wage, paying taxes, surviving. I'd often be asked through those years that very same question, "What are you doing with yourself?", as if your very value to society hangs in the balance - your answer immediately determining a pass or fail. And I would answer, and watch the look in the eye as the coin was tossed. But I always knew in my depression and anxiety-ridden mind that it was a double-tailed coin; a fail fait accompli. 

The judging then comes. "You're smarter than that; capable of far greater things than that; why are you not doing A or B, or even C? You're a natural at those!" These things are sometimes even said verbally by the other person, saving me the agony of yet-again saying them myself in my head for the thousandth time or more! And yet, there are no accompanying carefully pre-prepared replies to share. That would suggest a mind that plays fair. 

Now (being placed on a Disability Support Pension), those questions -spoken or unspoken- will be asked louder, and with more incredulity. And with added judgement; maybe in their minds, but definitely in mine. "A disability Support Pension? What? I see no wheelchair! No cane or guide dog! You slacker! You bludger! You drain on the public purse! YOU ARE BETTER THAN THIS!" You may not say any of these things aloud. You may not even (and may whatever merciful God you might believe in, bless you) say these things in your head. But that is all for naught, for I have already said them for you, in mine; many, many times over. But paradoxically I have enough self-evidence and external diagnosis to also give me the truth, even though it is that very truth that makes it hard for me to accept.

A recent wind storm ripped through an area of forest I often walk the tracks of; ironically I take these walks to relieve the symptoms of my disability, and consequently self-judge (for my family and friends) that this very activity is more evidence that there is nothing wrong with me. The day after the storm I walked my oft-travelled path, only to be confronted by obstacles of fallen tree limbs, and even whole trees. Some of these trees were very familiar to me, and I was shocked at how strong the winds must have been to fell these seemingly immovable, strong timbers. It was only upon closer inspection of a few that had been snapped off at their bases, that I realised it wasn't just the strong winds that dropped these trees. Under a layer of solid-looking, invincible-seeming bark was a compromised, rotted out, weakened interior. It was only a matter of time for these mighty-in-appearance timbers to topple.

Yes, it is a simplistic analogy. But I reluctantly accept it has merit. I have seen the report that reads "Colin has fragile mental health and he meets the DSM-V diagnostic criteria for chronic anxiety (Generalised Anxiety Disorder), Panic Disorder and Major Depressive Disorder and sleep disturbance (Insomnia), which all lead him to feeling helpless and hopeless as his medical and mental health will never improve to a level which would permit him to return to the workforce in any capacity now or in the future." And still I hear "Faker!"

I have read the report that says, "Colin (has developed a) lifelong fear and anxiety due to hypersensitivity of his autonomic and sympathetic nervous system as a result of his 'fight and flight’ response being permanently turned on historically and indeed most definitely currently… Colin's conditions mean that he is in chronic and permanent state of fear, anxiety and panic all the time with his conditions flared with even the smallest task or daily living activity out of his comfort zone." And I hear, "Bludger!"

I have read the report that reads, "it is clearly evident that Colin be eligible for the Disability Support Pension given that his mental and medical conditions will never be fully resolved - he will never recover from his medical nor mental conditions as they are progressive in nature, and it is thus highly unlikely that he will ever learn to seIf-manage his anxiety, panic, and depression, as a result of these conditions being linked to the wiring of his brain rather than a chemical imbalance correctable with medication or an environmental stressor which can be changed." And yet I still hear the voice cry loudly, "You drain on the public purse! YOU ARE BETTER THAN THIS!"

I share this, not for sympathy, but for understanding. Understanding that whatever I do that seems "normal" or even "adventurous" or "overly ambitious" are my often-futile (buying a motor scooter to gain greater self-mobility? Trying to get an overly-ambitious short film made?), BUT occasionally wonderfully spirit-rewarding and sticking-it-to-my-stinkin'-mental-illness (finally getting a slightly less ambitious Short Film made, and still having most of the cast and crew still speaking to me? Pushing myself and my son to do a weekly podcast? Recognising that something is "special" enough to photograph, and actually photograph it? Donating blood products? Or, more essentially, just getting out of bed? Getting out of the house?) attempts to at least thicken that outer bark; to do whatever I can to improve my outer-resilience, because my inner is pretty well fried. Apparently. Or I'm just a pathetic slacker. It's hard to tell when you aren't confidently able to identify your genuine reality. My mental illness lies to me, for good and ill, constantly.

Now you know all this, may I ask a few things of you? It may seem counter-intuitive, but nine times out of ten a suggestion of "Have you tried X? I hear it's very effective/ my cousin uses it / it completely healed my own (sounds a bit like you've got what I've got) mental illness." I am very willing to ask advice of individuals, but this post is not an open invitation for unsolicited advice. I could certainly write a post at least as long as this one covering all the things I've given a good ol' go at, so it's more than likely that I've tried "it".

Also, and this may seem unrelated, I implore you that if you are currently in any way supportive of the yet-again proposed drug tests for welfare recipients, and a Cashless Welfare Card, I ask that you spend as many hours as I have sitting in a Centrelink waiting area. You will quickly realise it is NOT filled with "junkies squandering your taxes on meth and ice". It is filled with "You"- but "you" who has just been laid off, or injured and suddenly unable to work, or replaced by a robot/computer/consolidated team running out of Melbourne. It's filled with people like You, and definitely people like me. If you want "easily-potential-you" or definitely-me to have to be watched peeing into a cup for a drug test that has been a huge waste of money in places like New Zealand, or to only be able to buy things at designated stores using a restricted (and most likely privatised-and-making-a-rich-person-richer) debit card, then so-help me, unfriend me now. The utter humiliation and frustration of enduring the Centrelink "system" -which is now a jumbled mess of cobbled together "smart ideas" from decades of election promises, including the expectation that everyone young and old should be able to navigate their way around an app that seems purposely designed to befuddle, confuse, and crash - is already cripplingly dehumanising. Add drug-testing and payment restrictions to the already down and poor and you are not capable of true "friendship" in my books.

If you've made it this far through my ramblings, I thank you. Understand that most days I'm doing okay. Ask me to do stuff with you; there's a good chance I'll decline - but please keep asking. I don't do "peopling" well, but it's another potential way of thickening my bark.

Also understand that today, as I write this, was not one of those "I'm doing okay" days. The last few have been particularly sucky, in fact. If you need that as an excuse to filter this post, though, I suggest doing so with caution. It may have reduced my abrasiveness filter (for which I am sorry if that is truly the case) but I believe all I've said is what I intended to say in the first place - but maybe with half the words!

With love,

Colin

Submarine Propulsion Technology Consultant for the Swiss Navy

The Impossible Task

This post is a "reprint" of a Twitter thread that I have stumbled upon a number of times over the last year, and reread each time. I share it here mainly for my own benefit for finding it again, and maybe increase the chance that someone who needs it may stumble upon it.

I claim no responsibility for the content, and have maintained the enforced Twitter "Paragraph" structure as much as possible, except where the author indicates a flow on to the next post, where I have joined them up. I have also put a break in where M. Molly Backes returns to the thread a few days later to respond to the overwhelming reaction her original thread caused.  The illustrations are also in the same location in this reproduction as they are in the original Twitter thread post.

I thank her again for her succinct words, that ring so very true for me, and hope she is OK with me sharing them here. The title I have taken from the post itself:

The Impossible Task

A Twitter thread by M. Molly Backes

Aug 28, 2018

Depression commercials always talk about sadness but they never mention that sneaky symptom that everyone with depression knows all too well: the Impossible Task.

The Impossible Task could be anything: going to the bank, refilling a prescription, making your bed, checking your email, paying a bill. From the outside, its sudden impossibility makes ZERO sense.

The Impossible Task is rarely actually difficult. It’s something you’ve done a thousand times. For this reason, it’s hard for outsiders to have sympathy. “Why don’t you just do it & get it over with?” “It would take you like 20 minutes & then it would be done.” OH, WE KNOW.

If you’re grappling with an Impossible Task, you already have these conversations happening in your brain. Plus, there’s probably an even more helpful voice in your brain reminding you of what a screw up you are for not being able to do this seemingly very simple thing.

Another cool thing about the Impossible Task is that it changes on you. One time it might involve calling someone, but maybe you can work around it by emailing. Another time it’s an email issue. Then when you think you have it pinned down, you suddenly can’t do the dishes.

If you currently have one or more Impossible Tasks in your life, be gentle with yourself. You’re not a screw up; depression is just an asshole. Impossible Tasks are usually so dumb that it’s embarrassing to ask for help, but the people who love you should be glad to lend a hand.

If you have a depressed person in your life, ask them what their Impossible Tasks are & figure out ways to help—without judgment. A friend once picked me up, drove me the two blocks to the pharmacy, & came in to help me refill a prescription. TWO BLOCKS. It was an amazing gift.

The one good thing about struggling with Impossible Tasks is that they help you to be gentler & more empathetic with other people in your life, because you know what it’s like. You know. The trick is to turn that gentleness & empathy toward yourself.

_________________________________________

Sept 2, 2018

Hi everyone! I am overwhelmed & deeply gratified by the response to this thread. I have loved hearing from so many of you, & it has been beautiful to see you lifting each other up. I have been trying respond to everyone but I'm afraid there are simply too many to keep up with!

To answer a few common questions:

1) "Impossible Task" is not an official name, just what I've always called it. A psychiatrist might use the term "executive dysfunction."

2) Experiencing this does not necessarily mean you're depressed; it can be a side effect of many conditions including anxiety, ADD, ADHD, OCD, PTSD, autism, grief, stress, fatigue, chronic pain, etc, and/or a combination of the above. If you're concerned about your particular experience, I recommend seeking professional advice (& yes, I realize that can be its own Impossible Task!)

3) Different strategies of treatment--including medication, talk therapy, CBT, meditation, exercise, smooching puppies, etc--work for different people. What works for one might not work for another, & what worked for you in the past may not work in the future.

Let's not be too prescriptive with each other, because statements like "This worked for [whoever], why doesn't it work for you?" or "My cousin was depressed until she started training for a triathlon--why don't you do that?" often feed our inner voices of guilt & shame and lord knows that none of us need MORE guilt rattling around in our brains.

4) Unfortunately, there is nothing you can to do fix someone else. You can't "make" someone get better, no matter how much you love them. It sucks, I know. And sometimes, you can't even help them!

People who are struggling with depression, anxiety, etc, may not allow you to help them with their impossible tasks because they're so embarrassed about them. That's ok! In those cases, you can always leave the door open to future help, & just love them fiercely in the meantime.

5) If you're currently struggling with one or more Impossible Tasks, you're not crazy, you're not lazy, & you're not alone. Try to be gentle with yourself. Beating yourself up isn't helping! Consider asking someone to help--sometimes just having company during the task can help.

6) And finally, despite what depression tells you, this won't last forever. There will be a day when you're able to tackle a whole stack of old mail, or drive straight to the post office, or get out of bed without effort. There may even be a day when you WANT to! Those days usually come incrementally, not all at once. But one day, hopefully in the near future, you'll feel like your favorite version of yourself again, and it will feel like seeing the sunshine for the first time in ages. It's coming, I promise. Until then, hang in there.

Take care of yourself, even if that means cutting major corners in your life, or not being "productive," or living on Netflix & takeout for a while. It's okay. And try to let others take care of you, too, even when you don't believe you deserve it.

Remember that people want to help you because they love you, & allowing them to do something for you is its own form of kindness. Don't rob your friends of the chance to feel good by helping you do something that's impossible for you but a cinch for them!

Last thing: whenever you're tempted to beat yourself up for being "lazy," remember that you fought harder to get out of bed & get yourself dressed today than the average person could even imagine. You're not lazy. Your mountains are just that much steeper. Keep going. ❤️

Anxiety

Two years back, I was working on a small pet project. For years I'd wanted to get a group together and make a short film. Two years ago today, I posted on Facebook the following. I repost it here so it's easier for me to find and remind myself that I DO finish things sometimes, and it's worth it!

People have asked me, how did the Second day of Shooting go yesterday?
Not as planned. Or... Not as not planned. I kept second-guessing myself with a heap of things, constantly indecisive, and wasted people's time and effort, petrol and temperaments in the process. Weather and temperature and time of sunset were problematic. We got some good footage, but didn't wrap filming. The blooper real should be good though!

Introspection follows:
Most of you know I suffer with anxiety and depression. They are constantly feeding on each other,  both sharing the role of cause and effect. I have long bouts of being frozen with anxious inaction, thinking, " Do something... You're wasting time... You are SO going to regret this Not-Actually-Doing-Anything!!!" But if I actually break through that (and for the first 6 months of being payroll clerk, or starting a new job, or having an interview, or an exam, that break through usually involved violently throwing up first) and actually commence something, I am constantly bombarded with thoughts of "this will all end badly... you suck at this... You know you'll just end up quitting like you always do... Quit now before you make a complete fool of yourself... Let's face it, no one believes you can do this... You are surrounded by people who are incredibly kind trying to help you out, but you are wasting their time - and whatever modicum of friendship they may share with you. This is no good... You. Will. Fail."
Mental illness is incideous, and not just mentally but physically debilitating. The last two days of filming, I have started the morning feeling much like anyone would who has two exams, their wedding, the birth of their first child, their driving test, and their first sky-dive all happening that day. It is seriously that bad, and probably understating it. My medication helps me stay the course a lot better than I used to be able to- hey, I don't tend to throw up anymore!-  but mental illness is not just "in your head". It manifests itself in quite severe physical ways. (Anyone who has watched me try to wield a pen could vouch for that!)
So if it is so debilitating to even contemplate putting myself through this, why would I? I asked myself that (yet again) in the shower today, still shaking with the agonizing feeling of "I just can't do this!" that has riddled my life for so long. And I had a bit of an "Aha!" moment. It consisted of just three words: "Tour de France". 
Every year Wendy (my long-suffering wife) stays up 'til all hours watching this grueling race, and every year I watch a bit, and nearer the end watch in incredulity at the ones at the back, the ones who have been riding for weeks with no hope at all of actually winning. And every year I ask myself, "Those guys are knackered, they are killing themselves, they have no chance of a place; why do they keep going?!?" The aha moment was that the answer to both of my questions is the same. 
I'm still not entirely sure what that answer is; I suspect that the fear of regret plays a part, but also know that regret can be a cruel diet for depression.
It may be part of the human psyche to conquer things. I don't know, but I do know this: This film is not going to be the "masterpiece" I have in my head. I don't think I have the "tools" to do that. But I do think that there have been some skills developed during this experience- not just me, but the rest of the crew- that have made this worthwhile. I also know that there is, I think, just an evening's worth of filming left. And I think WE are now more skilled to do it (coming from someone who has never been a team player, due to feeling more comfortable to "inevitably fail" alone, and has therefore found it hard to share out the challenges) and understand more what is involved (the ages waiting, followed by everything happening at once!) I'm hoping that I can convince myself that you also genuinely want to see this through, even though you now have a scarier idea of who you're dealing with: A scared weird little guy trying to complete a Tour de France from the back of the peloton, with a broken collarbone and severe saddle sores. But I need to get it done, and keep the momentum to do it.
Gilbert, Fletcher, Paul, Tyson, Thomas, and Nathan (yes, I still very much want you!), please keep pushing me; we need to do this before Fletcher disappears on his mission, or the Baleno (his very sick car, which features in the film) dies; whichever comes first!

Spoiler Alert:
The short film was, indeed completed. A premiere screening was held in my local Church's recreation hall, with the permission of my local church leader - which, considering some of what goes on the film, was quite a surprise, but for which I'm very grateful to my Bishop! It was invite-only, with cast and crew each adding names to the list. We managed to fill the hall, and even my Doctor (who helped push me along, and is very involved in my mental health care) and her husband came along! I was, of course, a mess, but they seemed to enjoy it.
The film can be found on YouTube, and if you push past the black screen opening credits that go on too long, to where the film starts, it might keep your attention! It can be found here.